Celine Dion hopes to ‘raise awareness’ of stiff-person syndrome with new documentary

Celine Dion hopes to ‘raise awareness’ of stiff-person syndrome through a new feature-length documentary. Picture: REUTERS/Mario Anzuoni

Celine Dion hopes to ‘raise awareness’ of stiff-person syndrome through a new feature-length documentary. Picture: REUTERS/Mario Anzuoni

Published Jan 31, 2024

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Celine Dion hopes to "raise awareness" of stiff-person syndrome through a new feature-length documentary.

The 55-year-old singer announced in 2022 that she had been diagnosed with the neurological disorder - which affects her muscles - and Dion hasn't shied away from the issue at all in 'I Am: Celine Dion'.

She said: "This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me.

"As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans.

"During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis."

The intimate documentary - which will be available on Prime Video in more than 240 countries and territories worldwide - will give fans a behind-the-scenes look at Dion’s life amid her health struggles.

Jennifer Salke, the head of Amazon MGM Studios, said: "Celine Dion is a global megastar with a career defined not only by her extraordinary work ethic and passion, but by her dedication to her fans.

"This documentary is a raw, intimate portrayal of a pivotal time in her personal life and career, pulling back the curtain on her journey as she overcomes an unthinkable diagnosis. It’s an honour to be trusted with her story, and we can’t wait to share it with Prime Video audiences around the world."

The project has been directed by Irene Taylor, the Oscar-nominated filmmaker, and Prime Video will announce a release date in due course.